Dupuytren's treatments, reviewed

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KC

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Well I can't play guitar quite yet, though I did play slide for an hour last night, so here's a review of two treatments for Dupuytren's syndrome. If you don't know what this is, well, good for you. Nothing to see here.

Little finger, left hand, had a needle aponeurotonomy (sp?) about five years ago, worked like a charm for a few years but then it came back. Had a treatment with Xiaflex last week, still recovering. They seem pretty comparable in terms of effectiveness, from the reading I've done -- no more recurrence with one or the other. And in terms of impact, they also seem pretty comparable. I'll be playing again in a week or so, I expect, which is about how long it took with the needle.

So kind of a toss-up so far. The difference is availability, coverage and cost. The needle thing is pretty well-established in Europe, less so here; you may have a hard time finding an appointment and your insurance may not cover it. The cost difference is pretty substantial. The needle thing I had done a few years ago cost right around a thousand dollars, everything included, one visit to the doc. Xiaflex is $5000 for the shot and 3 office visits. My insurance covered it so yay but if you have to go out-of-pocket it's a pretty big difference.

Both of these seemed preferable to the full-scale surgery, which is pretty drastic, long recovery time and danger that you will lose some function. If everything goes as I expect it to, not a huge difference between the two. Just thought I would share my experiences but remember, this is medical advice from a musician. Completely untrustworthy!
 

chezdeluxe

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Thanks I have signs of it in the left hand of course, but it hasn’t changed much at all in the past three or four years. Fingers crossed.
(Just realized what a bad pun that is):twisted:
 

Rob J

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I haven't checked in here for a couple of months, partly because I've been busy with things other than music but also partly to not playing guitar anymore because of - yup, Dupytren's.

I've had it for years, worse in the left hand but in the beginning stages on my right hand as well. The left hand stayed pretty steady for a long time but has begun progressing much more rapidly in the last several months. I can still play, but get a burning, stinging pain along the pinky side of my palm afterwards. Enough to make me not want to play.

I have had two consultations with two different doctors. One specializes in the needle technique and the other in the chemical version. I've already made up my mind that I'm NOT doing the full on surgery. But, even the two less invasive techniques scare me and since it seems to be pretty certain that the condition will just come back, I'm on the fence. I'm pretty close to 74, and almost think that maybe it's just time to accept the fact that there's no cure and maybe just find a way to live with it.
 

KC

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maybe it's just time to accept the fact that there's no cure and maybe just find a way to live with it.

I would encourage you to give it a shot. Both of these procedures are kind of painful and inconvenient (one-handed showering!) but I played my guitar for an hour last night, less than a week out. The experience will be in the rearview mirror pretty quickly and you'll get relief for a while and maybe permanently. I say go for it.
 

Rob J

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I would encourage you to give it a shot. Both of these procedures are kind of painful and inconvenient (one-handed showering!) but I played my guitar for an hour last night, less than a week out. The experience will be in the rearview mirror pretty quickly and you'll get relief for a while and maybe permanently. I say go for it.

Thanks for the encouragement KC. I need to hear positive feedback like that and you're right - it is probably worth a shot. My insurance will cover it and my doctor is close by. I'm going on vacation at the end of July so I'd want to schedule anything after that just in case there were any complications.

I guess I should contact the doctor and at least schedule another consultation.
 

Harry Styron

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I have DuQuervain's tenosynovitis (tendonitis) in both thumbs, carpal tunnel syndrome in both hands, and the beginnings of Dupuytren's in my left hand. I have got relief from CTS with steroid shots, and have been doing exercises to strengthen my hands that are prescribed by an occupational therapist, as well as icing my hands and wrists after playing guitar. The icing really helps, so that my hands are not aching so intensely the morning after, and the exercises are making significant measurable differences in my finger strength and grip strength.
 

Barbeque John

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I've had surgery on both hands, done by a doc with a very good reputation, as a hand surgeon. Left hand first, then the right. I am a about five years out, and am getting a cord on my left hand, but, so far, it hasn't advanced enough to be a problem. Surgery was less than a thousand out of pocket, on my left hand, about 5,000 out of pocket, on the right, due to an outrageous facility bill from a local provider. Ask many questions! Recovery was pretty fast, no problem there. The hands are ok for playing, more problems from old injuries, than anything else. CBD cream helps those, and I am still playing and singing.
 

DjimiWrey

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good on 'ya boys and girls for tryna stay in the game!

soldier on soldier on soldier on!

losing our ability to play our instruments as we age is among life's cruelest realities and an ongoing struggle to those of us who soldier on; even though we've realized notable losses in speed and dexterity as well as increases in pain and debilitation...
we soldier on
the longer we live, the more crap happens to us; then we die...

some of us are able to continue via gawd's grace along with the morning ritual of coffee, pain pills, and antidepressants
tune it up and turn it up....cheerio!
suck the jam outta that old donut, chew the rest using the part of your mouth that still has upper and lower teeth, and be grateful for clean water, fresh coffee, tdpri, and electrickery

good on 'ya !! soldier on !!
 
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