Tinnitus remedies…anything worked for you?

Discussion in 'Bad Dog Cafe' started by LGOberean, Oct 22, 2019.

  1. LGOberean

    LGOberean Doctor of Teleocity

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    I know this has been discussed before. I’ve even chimed in on the subject in times past. But I want the most current thinking on the subject, about what, if anything, has worked for you.

    My background: I never used ear protection when shooting until I was in my late 20s/early 30s. I used to drive a bulk oil tanker, delivering to machine shops, drilling rigs and refineries. The company I drove for didn’t provide ear protection, so I eventually bought ear plugs myself. I didn’t play out/gig before the year 2000, didn’t own an electric guitar until 2008, so my problem was not caused by rocking out in a power trio or anything like that.

    My tinnitus came primarily from a side effect of quinine. I contracted malaria in Papua New Guinea in late 1985 or early 1986. I had taken a ride in a dugout canoe on the Sepik River in the East Sepik Province, to retrieve a gravely ill old man from his village on the banks of the Sepik. On that river, I was eaten alive by mosquitos. By the time I got back home, I had so many bites I looked like I had the measles, and shortly thereafter, had an outbreak of malaria.

    Then, about a year later back in Texas, despite having gone through an eradication regimen with various derivatives of quinine, I had another malarial outbreak. The doctors couldn’t diagnose it. I told them what it was, but of course they couldn’t let me self-diagnose for liability reasons. It took 6 days (sending my blood work to an infectious disease specialist in San Antonio) to get the diagnosis that I already knew: malaria. They then treated me with straight quinine, not some derivative thereof, and the dosage was strong, and for a protracted period. Tinnitus and/or hearing impairment are common side effects to quinine, and that’s what gave me my tinnitus.

    So I’ve had tinnitus since 1987, and for the better part of 30 years, I just lived with it. I’d notice it if I thought about it, and under certain conditions it affected what I could hear of conversations. However, in the last few years, it’s gotten worse, more noticeable in my left ear. I’m getting concerned about it affecting my ability to perform, particularly my singing.

    So I’m very interested in what my fellow TDPRI members/tinnitus sufferers have tried in the way of remedies. I’m not interested in any pharmaceutical claims, or any devices or techniques that simply try to mask the symptoms or distract me from it.

    Have you tried any natural, herbal or vitamin supplements that have actually helped?
     
  2. Bones

    Bones Telefied Ad Free Member

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    Vigorous sexual congress 4-6 times a week.

    Your ears will still be ringing, but so what.
     
  3. unixfish

    unixfish Poster Extraordinaire

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    My doctor wants to clip a mask over my face then put me into a small, magnetic tube for 20 minutes of testing "to rule out anything serious".

    The fear of claustrophobia may just kill me. I think that would be more serious.
     
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  4. dr_tom

    dr_tom Tele-Meister

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    I have honestly found nothing that deals effectively with tinnitus other than trying some form of mindfulness/self hypnosis and learning how to tune it out. I learned years ago how to direct my focus to my hiccups (diaphragm?) and simply 'stop' hiccups in their tracks. I tried this with my tinnutis. It's not as successful, but it can sometimes help.

    Interested to see whether others have tried medical options.
     
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  5. uriah1

    uriah1 Telefied Ad Free Member

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    and no, but new drugs
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    I read.
     
  6. jimash

    jimash Friend of Leo's

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    Those home remedies, apparently don't work when you have actual tinnitus induced by noise. My darn drum,mer changed the heads on his snare and my left ear is now permanently impaired, and singing a very high tone.
     
  7. ssfarm

    ssfarm TDPRI Member

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    I use to have severe tinnitus. I was told to go see an ear doctor and have my ears cleaned out. I thought I had nothing to lose and went. Cleared it right up. Not painful or expensive. $25 dollars I think. Then a few years later it started up again and I went back. It stopped before I left the clinic. Been fine ever since. Maybe this could help you.
     
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  8. bender66

    bender66 Poster Extraordinaire

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    Your ears would be ringin from all the hollerin'.

    About a year ago I noticed an abrupt onset of tinnitus & equilibrium issues a couple months apart. I went to the Dr to no avail. Felt good Winter thru Spring, Fast forward to July where my lymph node has swollen (groin) coupled with confusion, disorientation, lethargy, severe fatigue, & now heart palpitations, etc. MRI's, ultrasounds show all clear. It came & went without notice & had another episode a month ago. More blood labs as quickly as I could showed nothing. I was falling apart physically, mentally, & emotionally.

    I finally narrowed it down, after having been rescued from work by my ex, closer than any Dr would have. Any guesses?

    Another clue - In my state I hadn't noticed my cat was also ill looking (weight loss) with strange behavior.
     
  9. Endless Mike

    Endless Mike Friend of Leo's

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    What has worked for me? No stimulants of any kind - caffeine, pseudoephedrine (sold for sinus congestion at the pharmacy, sometimes prescribed) and a guy named Julian Cowan Hill, who can be found on youtube. I was curious about him after hearing how he went from tinnitus that was debilitating, made him near suicidal, severely depressed, to having almost no tinnitus at all.

    My experience with tinnitus combined with what medical science currently knows about it tells me they are WRONG. It's *not* in the ear, it's neurological. This excludes some cases of actual physical damage to the inner ear itself. These are the exception rather than the rule. Tinnitus apparently is the nervous system listening into itself. Almost everyone has a little, but they don't hear it because it is so quiet. But for some of us, our CNS gets turned up internally and we start hearing these sounds. That's a poor explanation, but if you do some research you'll come across this idea, explained properly. Anyway, after quitting stimulants and using Mr Hill's methods, my tinnitus is almost completely gone. Some days its not there at all. If I get stressed out, it gets louder, but never as it was before.

    As an aside, I went to see an audiologist three years ago for custom fitted hearing protection. She is supposed to be the leading authority on tinnitus in this area. What makes her the leading authority? She attended some conferences on tinnitus. Even with those who are officially sanctioned, and scientifically backed, you can get some serious snake oil.
     
    Last edited: Oct 22, 2019
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  10. Apache Snow

    Apache Snow TDPRI Member

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    Had it since 1969. I was in a combat unit in Vietnam. 3/5 Cav. Shot an M60 machine gun and with the 90MM cannons on the tanks, mortars and other loud noises left my ears in bad shape. I draw a disability from uncle Sam because of it. I'm sure if the government could find a cure they had rather do that than pay me every month. I have it 24/7 in both ears. I've had it so long I don't hear it any more unless I think about it. I run a fan in the bed room at night to help drown it out. I don't believe there is a cure.
     
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  11. VintageSG

    VintageSG Friend of Leo's Ad Free Member

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    Home remedies 0, tinnitus 1

    Nothing, nil, nada, zilch, zero, eff-all has ever had the claimed effect of reducing it for me.

    Sometimes, I forget about it.

    Learn to love classical music radio broadcasting on FM and have constant, low level music around you. The single best non-chemical I've ever trialled was a pair of hearing aids. They worked for about a week before the bloody incessant whine returned, then I returned them at the end of the trial. They were nearly £2,000 each too!

    Good diet, well rested, keep the stress down and Beethoven.
     
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  12. imwjl

    imwjl Poster Extraordinaire

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    I finally went to my physician where I also had the good fortune to be referred to the specialty clinic at our area's top hospital. It was really obvious to me they were competent and that it was a university research hospital with people studying it. The woman testing me said it appears I do white collar work but have hearing loss typical of long ago manufacturing or truck driving - that's me. For now little can be done.

    This might sound silly but she said be mindful of stress and good sleep. She's right.

    A while ago I made a post wondering about headphones. The noise cancelling Sony headphones I got do not solve the problem but they have sound profile adjustments to emphasize some frequencies and make music sound nice at low volumes. It really helped me enjoy music and reduce stress.

    When I have low sleep or a high stress week the problem is worse.

    The other tip at the hospital was a bit strange but the woman was right. My family will not have much patience when I don't hear so well. The woman at the clinic said do not allow them to say never mind or leave you out of a conversation. She said hearing aids would probably help but suggested they can have negative ramifications at work and I have become better about hearing when I read lips in a conversation or really concentrate.

    That qualified diagnosis and guidance helped me more than I wanted to admit even though nothing really solves the problem.
     
  13. sudogeek

    sudogeek TDPRI Member

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    I have tinnitus which is the constant low-grade cicadas, like many. I believe it is from antibiotics or other meds I received during a surgical procedure; certainly was worse after that. It also clearly gets worse if I use ASA or NSAIDs.

    I find a wee dram of Irish helps. Also, an antihistamine like Benadryl helps somewhat. Of course, it is much less noticeable if there is background noise in certain frequencies, like road noise, a slightly open car window, music, etc.
     
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  14. sudogeek

    sudogeek TDPRI Member

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    Duplicate post
     
  15. WireLine

    WireLine Tele-Afflicted

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    Thank you for your service
     
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  16. WireLine

    WireLine Tele-Afflicted

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    And yes, I’ve got atrocious tinnitus, mainly caused by military related weapons fire...

    things I do now: always wear in ear monitors for gigs, masking noise sources (fans, tv on low, whatever), and caution.

    things I used to do included most forms of self medication, turning EVERYTHING up to drown it out, and whatever got me to sleep at night...none of these methods worth a dang.

    one thing to remember is long term loud tinnitus can affect your mood and overall mental health..
     
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  17. Toto'sDad

    Toto'sDad Telefied Ad Free Member

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    I learned to control my hiccups by controlling my diaphragm many years ago, it still works every time that I get them. I've had tinnitus since I was 19 years old, instantly brought on by a blow to the head. I have other hearing loss problems, but the tinnitus is the worst of it. My wife is always trying to get me to get hearing aids, but some of my hearing frequencies have been overtaken by the constant ringing. I don't think making things louder would help that.
     
  18. Toto'sDad

    Toto'sDad Telefied Ad Free Member

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    I have had it for going on sixty years. But I could still hear pretty well out of one ear, until on the range one time, I got mixed up on how many rounds my wife had in a 686 Smith. A friend tapped me on the shoulder, and I pulled my head set off on the side she was shooting from just as she let go a round from a very close proximity to my ear. My ear bled for a while, then drained for a month, now both my ears would make a good door stop.
     
  19. Speedfish

    Speedfish Tele-Meister

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    Has anyone tried the one, that some companies offer, where you listen to different tones to find the tone of your particular tinnitus, then "your tone" is buried in music tracks that you enjoy? Supposedly you listen to it and your brain will switch off your tinnitus.
     
  20. JL_LI

    JL_LI Friend of Leo's

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    My tinnitus got worse when my dosage of Lipitor was doubled. The dosage was increased to counteract an increase in bad cholesterol that was a side effect of a med I am taking for diabetes. I found two things taken together that help enough that tinnitus rarely bothers me, even if it isn’t entirely absent. One is organic ginkgo biloba, 60mg of ginkgo leaf extract and 400mg ginkgo biloba leaf per capsule. The extract contains 24% ginkgo flavin glycosides and 6% terpene lactones. Ground ginkgo biloba leaf isn’t good enough. I take that in combination with a 100mg ubiquinol softgel with breakfast and dinner. Ubiquinol absorbs better with food. Ubiquinol is more effective than even large doses of Co-Q10. This isn’t cheap. It runs about $50 / month but to me it’s money well spent.
     
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