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Psoriasis - what remedy?

Discussion in 'Bad Dog Cafe' started by Weazel, Oct 24, 2020.

  1. Weazel

    Weazel Tele-Holic

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    Good people of the TDPRI community:

    I've had psoriasis on my hands and elbows since the early 00's. I have a prescription for Daivobet gel, and it works good if I remember to use it... It leaves the skin very thin though, resulting in cracks and blood. Especially with the dry climate we're entering now paired with the disinfection alcohol solutions requiered.

    Anyone with other experiences/remedies?
     
  2. 24 track

    24 track Doctor of Teleocity Silver Supporter

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    I cannot use neoprene braces for my joints , have a massive skin reaction similar to psoriasis , I ended up seeing a deratologist specialist through my doctor, ( which i would recommend) he ended up giving me a script for cortizone cream 5% (ouch) cleared it up but this is some thing I would not recommend except through doctors advice only. Cortizone has some serious side effects , prior to this if i wore neoprine braces I could wear one for about an hour then I would have itchy hives followed by a rash that lasted several weeks if untreated
    .
     
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  3. marc2211

    marc2211 Tele-Holic

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    I use coal tar shampoo and bath soap, also a cream called Eumovate which helps loads.
     
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  4. Wallaby

    Wallaby Tele-Afflicted Silver Supporter

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    On my scalp I use Clobetasol ointment and it keeps it in check - IF I remember to use it regularly.

    I count my self lucky that my case is mild and if I can avoid stress can disappear for months at a time.

    If I let it get bad and widespread I've used a Clobetasol oil under a shower-cap overnight for several days in a row, and it is kind of miraculous for me ( and messy ).

    Best of luck with it, I hope you find some relief.
     
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  5. KyAnne

    KyAnne Tele-Afflicted

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    I take a Taltz injection in my stomach (or thigh or arm-your choice) (given by the Dr. office) once a month now. It started out at one every 2 weeks a year ago. Your Dermatologist can get you on Taltz's program and it will cost you little to nothing on this program. The shots are done with a self-injector but I prefer my Dr. Office does it.
    The shots are very expensive if you are not on their program at
    $5800.00 a pop. Yes...you read that correctly. But at first I used to pay $65 and then $5 and now basically nothing.
    It takes care of psoriasis and psoriatic arthritis as well.
    Mine was totally gone in 3 weeks or so and I've been clear for a year now. "They say" it can come back if you stop the program but maybe not. Some stay clear. I will test THAT theory in another 6 months as I don't want to be on this forever.
    It does lower your immune system somewhat but I've never worried about that because with psoriasis your immune system is in overdrive already.They also give you a blood test every 6 months to check for tuberculosis because of supposed lower immunity. So I go along. :)
    Good luck and p.m. me if you have any questions!
     
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  6. Weazel

    Weazel Tele-Holic

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    I'm not very worried about my condition, although the arthritis part of it can occasionally get me out of the loop for weeks, especially when it attacks my wrist, shoulder, knee and ancles - crutches and ortoses ftw!.

    I guess I'm not anywhere near the need of injection treatment (@KyAnne) yet. And the Daivobet gel (kalsipotriol /betametason) works when I remember to use it. Hands, elbows, ears and a small patch in my skalp.

    I was wondering about some moisturizing remedy for when the Daivobet dries out/thin my skin.
     
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  7. JDRNoPro

    JDRNoPro Friend of Leo's

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    I developed severe psoriasis on my hands several years ago to the point of being debilitating. Couldn't work with my hands on hardly anything - constant cracks, splits, bleeding, etc. -and certainly couldn't play guitars any more.

    I had several prescriptions for various pricey cremes, ointments, and such for a couple of years but nothing really helped. Then at one visit, doctor asked if I had any joint pain (I did - knees) and then was prescribed Otezla. It is very expensive, but they offer considerable financial assistance. Everyone is different I suppose, but for me it has been a "miracle drug", seemingly with no ill effects. Essentially I am cured with no more symptoms and no limitations. Good luck - hope you find your "cure"!
     
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  8. Flaneur

    Flaneur Friend of Leo's

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    I've used the mildest soaps available, for most of my life. Non- biological powder, in the laundry. It was pretty bad for a time, when I was in my 20s- and a total ban on dairy products, for a few weeks, got it under control.

    Different things seem to work for different folks. Try everything, until you find what works. Good luck. :)
     
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  9. KyAnne

    KyAnne Tele-Afflicted

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    I used all those creams and salves/shampoos and they worked pretty darn well until one year I had a map of the Isle of Mauritus come up on my back right above my waistline and hell nor high water could get it to go away........thus...........Taltz to the rescue!
    Completely gone in weeks! I was floored! Great stuff. Cosentyx had for some reason denied me and my Doc said the Taltz Co. was easier to get along with so I went that route. I wish you all the best!!!
     
  10. catdaddy

    catdaddy Tele-Afflicted

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    Good old-fashioned Vaseline (petroleum jelly) is cheap, and a great moisturizer and protectant. It's not as cosmetically elegant (it's greasy) as some emollient cream formulations, but it is more occlusive and helps the skin to retain natural moisture probably better than anything else. One caveat: when used as an occlusive dressing over something like Daivobet it can cause systemic absorption of the active ingredients of the Daivobet which should be avoided, but using it on an alternating basis with Daivobet as a moisturizer should circumvent that problem. If Vaseline is just too greasy to tolerate, an alternative is Eucerin (also available OTC) which is almost as effective and is considerably less greasy, but more expensive.
     
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  11. wacolo

    wacolo Tele-Holic

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    I had a skin condition appear on my palms maybe 5 years ago. I went to a dermatologists for a couple of years and they gave me every cream, pill, injection you can think of. The only thing that would clear me up was a massive steroid injection and it would only last about a month before it came back. I was biopsied and diagnosed with lichen simplex chronicus. After all was said and done the most effective treatment I found was Apple Cider Vinegar. I wash my hands with it in the morning and evening. I cannot tell you it completely cured me but it keeps the redness and flaking at bay by maybe 80%. If you have not tried it I would give it a shot. It is cheap and readily available.
     
  12. jmp81sc

    jmp81sc Tele-Meister

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    My psoriasis started on my elbows and forearms and as I got older spread to my body and legs. Never painful but would get itchy and was unsightly.

    Otezla worked for me. Cleared it up within a month or so. This is not an immunosuppressant like some of the other medications.
     
  13. MilwMark

    MilwMark Doctor of Teleocity Ad Free Member

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    Only use vanicream. Soap. Shampoo. Lotion. Longish shower. Pat mildly dry. Keep bathroom doors shut. Apply vanicream thick while still damp.

    Two Zyrtec a day during flare ups. One daily all other times. Various rx creams and ointments on bad spots.

    Turned out mine was dermatitis. All in consult with dermatologist and allergist. Works pretty well.
     
  14. Bob Womack

    Bob Womack Tele-Afflicted

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    I'm a late adopter of psoriasis. I've dealt with other skin problems throughout life but didn't pick this one up until a couple of years ago. I was diagnosed with plaque psoriasis. My dermatologist tried a variety of steroidal skin creams and ointments over the last two years but we had two big problems with them:
    1. The plaques continued to grow until on my arms I had continuous plaques from my elbows to my wrists. That doesn't even touch the sites on my legs and back.
    2. Though it is a rare thing, it appears that the steroids were crossing the blood barrier and jacking up my blood glucose by 30-40mg/dl. As a diabetic that's not good.

    I've been on Otezla for three weeks and for the first time all the plaques are shrinking. My right arm might be mistaken for normal at this point. I'm waiting for the appeals process to finish up with my insurance company so we'll see how it works out.

    FYI, the initial period with Otezla is a little uncomfortable with gastric symptoms but they do, indeed, subside.

    Also, FYI, if you are going to do the rotating shampoos, rotate tar, salicylic acid, and Pyrithione Zinc shampoos. All three are needed to improve the condition.

    Bob
     
    Last edited: Oct 24, 2020
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  15. Weazel

    Weazel Tele-Holic

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    That is a great tip, thank you! If it don't work out, I can use it to pickle red onions!

    Oh, and I'm in Norway - and not familiar with Otezla, Cosentyx and such. I will avoid corticosteroids if I can. And again: My condition is probably not as severe as some of you guys'.
     
  16. Bob Womack

    Bob Womack Tele-Afflicted

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    I'll admit that while using Otezla I keep expecting to wake up one morning as a cute red head girl.

    Bob
     
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  17. Tuneup

    Tuneup Tele-Meister

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    I had this on my head, vinegar got rid of it permanently, I get in the shower pour it straight on head.
    Burns, so you may want to dilute it if that bothers you.
    About 2 weeks of that and it was gone, and the first time I did it, you wouldn't believe how much oil and skin came out.
    The medicated shampoos dont work for me, nothing did until I used white vinegar.
     
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  18. PoorNoodle

    PoorNoodle TDPRI Member

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    Swimming in the ocean (salt water) seems to help some people...
     
  19. Weazel

    Weazel Tele-Holic

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    Living in Norway, the ocean is as cold as your favourite spot in the fridge for beer....

     
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