Anyone here been to the Mayo Clinic?

Discussion in 'Bad Dog Cafe' started by Billy3, Jul 21, 2021.

  1. Billy3

    Billy3 Tele-Holic

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    I'm here right now. So thankful for this place. I've had two open heart surgeries and a kidney and liver transplant in the last three and a half years. All genetic abnormalities. Thanks Mom and Dad. Lol! I'm here for my annual checkup. Things are going very well, pending one more biopsy result. Just wondering if anyone else in tdpri world has experienced this place (Rochester, MN). I'm so grateful and lucky to have been here. The best health care l have ever experienced. I would not be here if not for them. Long story short, I was diagnosed with a "1 in a million type disease". Anyways, if anyone wants to share, I d like to hear your experience. Btw, I miss my guitars. Keep on picking!
     
  2. Milspec

    Milspec Poster Extraordinaire

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    I was there with my Father back in 1977 when he went through some mystery ailements that looked very dim at the time. Turned out that the Air Force misdiagnosed him for something, injected the wrong drug which destroyed his thyroid.

    I ended up back there for myself in 2004 when I was no longer able to eat and lost 87 lbs in 3 months. They were a God-send for my Father, but useless for me. In my case, they told me that they didn't know what the problem was, but that it appeared to be manageable at the local level and so they had no interest in my case. They seem to not like low hanging fruit, if there isn't a research paper in it, they don't bother with you.

    I spent the next 14 months living on plain oatmeal until the local doctors decided to just remove my gallbladder and hope for a "re-set" to happen. When they sliced me open they found a "birth abnormality" consisting of much of the digestive blood supply was wrapped around my galbladder since birth. An infection took place in the organ which swelled cutting off blood supply to various parts of the digestive system.

    My case ended up in the medical journals anyway, but not for the Mayo. I guess I am conflicted regarding their value.
     
  3. RollingBender

    RollingBender Tele-Afflicted

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    I got passed off to the Mayo 2-1/2 years ago with chronic low back pain and numbness in my legs. They tried some injections in my back and when that didn’t work, they wanted to burn the nerves in that same spot. I didn’t like that idea so I went back to a local spine specialist and begged him to dig a little deeper. He sent me to another local specialist in nerve stuff where I was diagnosed with fibromyalgia. Started taking a med for that and have been living without the back pain mostly since.

    I think the theory regarding the desire to write papers vs treating patients has a measure of validity.
     
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  4. DonM

    DonM Friend of Leo's

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    Which one? I’ve been to the one in Scottsdale. Great place.
     
  5. Billy3

    Billy3 Tele-Holic

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    Um... Rochester Mn.
    Please elaborate.
     
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  6. Lucius Paisley

    Lucius Paisley Tele-Afflicted

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    I don't like theme restaurants.
     
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  7. loudboy

    loudboy Tele-Meister

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    The one in Scottsdale doesn't take Medicare.
     
  8. Ignatius

    Ignatius Tele-Afflicted

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    It's only a matter of time before Miracle Whip opens their own clinic too.


    On a serious note - best wishes to the posters in this thread who have been there!
     
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  9. Crafty Fox

    Crafty Fox Tele-Afflicted

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    My Scottish niece was a nurse there for quite a few years till she returned home to care for my sister.
    I understand the Mayo to be very high quality........well of course, that's why they have UK trained nurses, haha!
     
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  10. Billy3

    Billy3 Tele-Holic

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    That sucks. I wonder why?
     
  11. bgmacaw

    bgmacaw Poster Extraordinaire

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    Got to do this...



    But, seriously... The one in MN saved my Grandfather's life back in 1956 when he had cancer. He lived until 1994. The one in Jacksonville, FL saved my Dad's life about 5 years when his local doctor had given up and was suggesting hospice care. I think they have some of the best doctors and diagnosticians in the world. If you have a problem your local docs can't solve, see them if at all possible.
     
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  12. jimd

    jimd Friend of Leo's

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    Haven't been to the Mayo Clinic, but the Cleveland Clinic is very similar. They took great care of my wife when she had some difficult issues a few years ago. The doctors and nurses were great. My only knock on them is that they are a huge bureaucracy that was very difficult to navigate. Making a phone call and actually talking to the right person could be an all day adventure. My wife's surgeon gave us her personal cell phone number. I don't think we were special, it was her standard practice to help her patients navigate the system.

    I am having a knee replacement done in a couple weeks. Since it is a routine thing, I chose to avoid the major hospitals here (Cleveland also has University Hospitals, which is also very good). Instead I went with a specialty orthopedic clinic. It is big for an orthopedic group, but tiny in comparison to the Clinic. My appointments are fast and efficient. I can see the doctor, get xrays, get fitted for a brace, schedule surgery and be out the door in less than an hour. It takes that long to park and find the doctors office at the Cleveland Clinic.
     
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  13. omahaaudio

    omahaaudio Friend of Leo's

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    The Hellmann's Mayo Clinic?
     
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  14. rand z

    rand z Friend of Leo's

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    Along with Johns-Hopkins and a few others here in the USA, the Mayo Clinic is top shelf if you're looking for help.

    I've never been inside, but from the outside it's quite impressive.

    (The one in Rochester, MN)
     
    Last edited: Jul 23, 2021 at 8:48 AM
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  15. imwjl

    imwjl Poster Extraordinaire

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    Not as a patient buy my nephew started his career as a physician there. He described his job there and at another institution as the people who look at each other and say WTF and then work out how and get going at the most challenging surgeries. Most often that's from from trauma, and people who have horrible health matters needing surgery.

    I wish you the best!

    Both with humor and being dead serious, my nephew and a friends wife who's a trauma center nurse ask and hope people will work at their health and well being as much as possible because it often makes a big difference in their ability to save lives.

    Again, best wishes!
     
  16. Larry F

    Larry F Doctor of Teleocity Vendor Member

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    I was there for a month in 2006, having been sent there by my university hospital. I was there with an onset of Guillain-Barre (auto-immune neurological disorder). By the time I got there, my condition was appearing to be chronic. It was called CIDP.

    I was majorly paralyzed and it was starting to affect my face. I was already starting to drool, and was expecting my eyes to stay open (it looks freaky seeing someone with their eyes wide open, giving a startled look).

    A doctor there had written the book on the illness, and several other docs specialized in it, too. Their approach was to hit it hard, with daily doses of IVIG (sort of a distilled plasma). In my experience, research hospitals hired them to do hospital work half time, while the other work was supported by grants. The docs don't actually get the money for themselves. Rather, they use the money to "buy out" half of their contract in order to do research. Also, 50% of the grant goes to the institution where they work.

    Basically, the vibe there was to move aggressively with the treatment. When I left, my upper body was in fairly good shape, but I still had (and have) paralysis in the legs and feet. I still use a cane when I go out, for balance. I managed to continue teaching for about 15 years, but it was very painful. I got around with a combination of canes, walkers, and a wheelchair. Just last night, my wife thought I might use the wheelchair at home, to alleviate the neurological pain that still plagues me. It is a very weird way to live, being in pain 24/7.

    While laying around in the hospital, I started playing blues guitar solos in my mind. (I had played guitar professionally for 10 years, but switched to composition for the remainder of my career.) I felt that getting a Telecaster, building a 5f1 from a kit, and re-learning to play. When you are in chronic pain, a little blues guitar acts as a cushion to my awareness of pain, which today is still at the front of my mind.

    I feel extremely fortunate to be able to interact with pain and not let it send me to bed for relief. Some of my compadres in my area were there with longterm neuro probs that made a few look like hell. Just a living hell for them. Others were there as a result of a horrible accident. When all of us were doing physical therapy, we would meet in a holding pen (ha-ha) and our therapists would come get us. There was no talking and no eye contact among us. Some had amputations or gruesome scars on their head. One girl was there, having fallen of a 2-story balcony. Instant paralysis below the waist.

    I have a lot of respect for these folks who lives were suddenly changed forever. Also had deep respect for the families who were supporting them. Their lives would be changed forever, as well.

    I couldn't have asked for better care and aggressive treatments at Mayo.

    Well, after sitting up writing this post, some troublesome pain areas have been ramping up. The best thing to do then, is to get into bed with a comforter. That's where I'm headed now.

    I try not to post so often about my battles with pain. A forum member a few years ago really slapped me down for posting about my illness. So, mum's the word, guys.
     
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  17. Telenator

    Telenator Doctor of Teleocity Vendor Member

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    Minnesota. Great experience.
    My girlfriend came with me and got a little intoxicated.
    I had rented one of those scooter carts because I couldn't walk more than 3 or 4 steps at the time. Spinal Stenosis. Anyway, I sat her in front of me and we terrorized the halls around the complex, laughing and bar hopping. I was in so much pain, it hurt to laugh!

    The staff was great, and the treatment top notch. And those scooter carts were fast!
     
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  18. gridlock

    gridlock Poster Extraordinaire

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    Been by the one in Jacksonville, FL and did a paper on the Mayo Clinic while working on my MBA. An impressive institution.

    Good luck with your recovery!
     
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  19. unixfish

    unixfish Doctor of Teleocity Silver Supporter

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    My wife's doctor is in a Cleveland Clinic facility. Just getting an appointment through centralized scheduling can be an all day endeavor. God help you if you need a sick visit.

    My doctor is with University Hospitals. They think really highly of themselves (UH does, not the doctor). They are raising their prices to match the Cleveland Clinic, because they think they are as good. Then the CC raises their prices because they think they are better and deserve more. Then UH raises prices... This BS has to stop. A well care visit is now running $450, and my employer is not negotiating very good rates. Heath care increases year by year are tripling what I get in salary increases. Just insane.

    OK, enough derailing, back to the original issue. I have not been to the Mayo Clinic.
     
  20. Steve Holt

    Steve Holt Friend of Leo's

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    No, but I've seen the Ken Burns documentary. Highly recommend. That and Civil War.
     
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