Little bit of bad news from the Dr. today

Discussion in 'Bad Dog Cafe' started by scrimmer, Apr 18, 2019.

  1. scrimmer

    scrimmer Tele-Afflicted

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    Eye doctor that is, so nothing life threatening here. I usually don't post much personal stuff
    like this as everyone has their cross to bear and mine are pretty light compared to a lot of people,
    but I do have to say it's weighing on me a little at the moment.

    I really don't have that bad of vision, just slight nearsightedness and nocturnal myopia.
    I wear eyeglasses as needed for things such as mainly driving at night or watching TV and I also am very sensitive to sunlight and glare and pretty much wear prescription sunglasses anytime I'm outside. Went for my checkup that was a little overdue and got a new prescription and frames.
    I splurged a little and have some pretty cool looking Oakleys coming now!

    As of late I have been having really blurry, cloudy vision in the left eye and often it feels extra itchy and irritated. Anyway; about 30 years ago I was diagnosed with an eye condition called Krukenburg's Spindle with Pigmentary Dispersion Syndrome. A lot of words which basically mean I have little pieces of pigments coming off my irises that float around inside my eyes and lead to elevated pressures inside.
    Because of this I have checkups pretty much at regular 6 month intervals and for 30 years it hasn't progressed.

    Until today. Checkup revealed the pressures in my eyes are way up, the amount of pigment floating around is up and I now seem to be at risk of damage occuring to the optical nerve in my left eye.
    The Dr. has referred me to a glaucoma specialist that I'll see in 2 weeks.
    Not real devastating news, but unnerving nonetheless. My grandfather on my Mom's side went blind
    with glaucoma in his late 50s and I also had a great uncle I never met that had glaucoma also, so
    I apparently got that gene. Bummer. My understanding is that with medical breakthroughs today I
    pretty much won't end up going blind as they did fortunately, but I'll end up on some kind of meds
    or eyedrops for the rest of my life I suppose.

    Anyway, sorry to be whiney, just wondering if any of you guys out there have similar issues or diagnoses
    and how yours is handled and your experiences with it. Thanks!
     
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  2. Nickadermis

    Nickadermis Friend of Leo's

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    Wishing you nothing but the best ! Don’t take those eyes for granted , keep up with your regular check ups just like you are doing !
     
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  3. aerhed

    aerhed Friend of Leo's

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    Yup. The drops. You may have to try several until you find one that won't give you tomato eyes. My mom has had laser surgery on the filter on one eye that dumped the pressure pretty good. I was okay until my 30's until I had a job that required drug testing. Two years without smoke and my pressure spiked. A good hit of THC will knock the pressure back for awhile. Might take 6 or 8 hits a day to keep it down. I alternate because I can't do the drops more than a couple days in a row without the red eye coming on. Get it fixed or controlled. Soon.
     
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  4. Synchro

    Synchro Tele-Meister

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    For me, the worst part of aging has been vision problems, although I’ve gotten off easier than some. With current treatments, you should have a good prognosis, but it’s still not fun to have to do any of this. I had cataract surgery two weeks ago, which came as a surprise, because it went from pretty decent to pretty poor in a hurry. But that’s cataracts for you.
     
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  5. Milspec

    Milspec Friend of Leo's

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    I was diagnosed with glaucoma at a work physical 8 years ago. It wasn't really high, but over the limit at around 22-23. In order to keep my job, I had to be checked every 6 months, laser mapped annual and yes, use the damn drops nightly. It cost me over $1500 per year to keep my job which didn't make me happy at all. My vision was still 20/20 at 45 years old so I really didn't see the big deal, but I understand the risks of glaucoma so I went along with it.

    About 2 years later, I went on a vacation and left my drops in the hotel fridge between cities (they were the non-preservative type) and so I went without for 2 weeks. When I returned home, I didn't bother to go through getting a prescription renewal either as I really didn't like the drops. At my next check up, they were praising about how well the drops were doing to control my psi....except I hadn't used the drops in 4 weeks. I didn't say anything and skipped the next month as well....yup eye pressures remained stable and that was end of my visiting eye doctors for awhile. I just went back a month ago to get a new prescription and my eye psi remains exactly where they were during treatment 18-19....although my eyesight was now 20/35.

    Your affliction is a new one to me, never heard of it and I don't really see how drops would help. Drops help with drainage, but the floating pigment isn't going to drain so I am not sure it would be a benefit. By the way, there are many natural ways to lower eye pressures....exercise and alcohol both lower eye psi as well as drops or THC and they are much cheaper with less risk.
     
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  6. John Backlund

    John Backlund Friend of Leo's Gold Supporter

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    I use 'the drops' nightly in my left eye, doesn't bother one bit, which is good, of course.

    I had cataract surgery on my right eye a bit over a year ago, and while they were digging around in there, put in some kind of 'stent' that has kept the pressure from mild glaucoma in that eye in the good zone.
     
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  7. 24 track

    24 track Doctor of Teleocity Silver Supporter

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    I have graduated to drops in both eyes , left eye bad , right eye catching up , at least Im not on phospholene iodide yet ( that is for life once you start ) ,my father was blind from this (4% vision in his left eye and the right eye was artificial) ...so thanks Dad, thois is the major reason why I dont care too much about my typos . because it wont get any better than it is now ...in the present , with the drops I have gone from pressures of 27 down to 15 in both eyes , but I do have macular nerve damage in the left eye with not much chance of it correcting itself.

    good luck to you eye sight is precious all the best
     
  8. Wallo Tweed

    Wallo Tweed Friend of Leo's

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    5 years ago my pressures were about 21-22. Went to specialist who put me on two different drops, 1 twice a day, and 1 at bedtime. They are both rather expensive, but my pressures slowly came down. About A year and a half ago he took me off the twice a day one, and released me to my regular eye doc. A month ago my pressures were still below 9 and I am now doing a trial with a much cheaper generic. Next month I will have my pressures checked, and if they are still low I will stay on that.

    When I was taking the 2 different drops my eyes felt gritty, and I had to use lubricating drops several times a day.

    Best wishes to the op with this.
     
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  9. uriah1

    uriah1 Doctor of Teleocity Ad Free Member

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    Ya
    I have to go to a specialist for a rare eye thingy
    no one can pronounce.
    They keep and eye on it (pun) once a year.
    wish you luck
     
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  10. fnkmstr

    fnkmstr TDPRI Member

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    I've been on twice yearly monitoring since 1977. My father had glaucoma, took drops for years until surgery. Better safe than sorry.
     
  11. Toto'sDad

    Toto'sDad Telefied Ad Free Member

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    Best wishes for effective treatment for your condition, and that you might be made well.
     
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  12. 24 track

    24 track Doctor of Teleocity Silver Supporter

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    mine has a candy dish in the shape of a eyeball .......eye candy ( seriously!)
     
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  13. gitold

    gitold Friend of Leo's

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    Hope every things goes well.
     
  14. Stubee

    Stubee Poster Extraordinaire Gold Supporter

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    I haven’t had any serious eye problems but know friends who have. I’m hoping they can get on top of your problem and fix things up, Scrimmer.
     
  15. schmee

    schmee Poster Extraordinaire

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    That's tough man. Best of luck.
     
  16. scrimmer

    scrimmer Tele-Afflicted

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    Thanks for all the responses and good vibes!
    I'm a little more at ease about it now than when I originally posted, was still a little in 'Holy S*#t - I'm going blind!' freakout mode last night. :)
    Surely don't want to lose my sight so I'll be following whatever the doctors recommend to a T.

    To go off topic here for a minute (I created this thread so I'm allowed!)- the 'eye-candy' dish thing is hilarious!

    So speaking of eye candy now, thought I'd use this chance to say:

    Mr. Backlund I've always thought your designs were very eye catching and innovative, but because I'm pretty much a traditionalist, no offense; but I honestly didn't see myself playing any of your guitars until I saw your RockerBox model! That's some eye candy that's right down my alley! Beautiful, stunning design bringing tradition and your artistry together in a way that I think will bring a lot of folks like me into the fold.
    I'm not in a position to make a purchase at this time, but I'm hoping that won't be a limited production run or anything, as I'm very interested in that design! Hats off to you, Sir! I can see one of these in my stable eventually.

    Peace to you all.
     
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  17. geoff_in_nc

    geoff_in_nc Friend of Leo's

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    Scrimmer a bit of hope here. My wife has/had the same/similar thing. She calls it snow-globe-eyeball syndrome. Before I met her she had 2 laser procedures to reduce pressure. A couple years ago she was checked again and all was normal and stable. I don't know if you'd call it remission or what. Anyway, I just wanted you to know that things can improve, it's so difficult to predict how a disease will progress. I wish you all the best and hope you have smooth sailing going forward.
     
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